For the past couple of years, we've been living in a sea of uncertainty about our future. But the one thing that was never uncertain was that we'll never settle for the next best thing. By virtue of our beliefs and the people we are--shaped by our unusual pasts and experiences--we've made some choices that... Continue Reading →
A sense of purpose and belonging shouldn’t be a privilege
How do you find a sense of belonging when you deal with uncommon or rare issues? How do you reconcile disabilities without losing your sense of self-worth? Are you selfish if you don't stay and try to fix a broken system? We recently returned from a trip to the United States. Part of the reason... Continue Reading →
I almost wished away the greatest part of me
There was a time in life I would've given anything to be "normal" (as far as I'd seen from those around me). However, having unexpectedly found myself in the rather unique position of becoming a father—with disabilities (Charcot-Marie-Tooth, Tourettes syndrome)—to a son who also has a disability (Down syndrome) has taught me that I almost... Continue Reading →
Running at the speed of life: With disability as the norm
Let's get straight to the point here: having a disability doesn't mean you are completely helpless. It simply means that you are having to learn and do things a bit differently from those around you, and that's something I have come to learn is not a failure. On the contrary, it makes you more creative,... Continue Reading →
Apparently, I’m Father of the Year 2023!
As I'm typing this on my phone in Amadeus' hospital room, my son is resting in his hospital bed, hooked up to a device that monitors his vital signs, while a soft "hisssss" can be heard from his oxygen mask. Meanwhile, my phone is buzzing left and right with congratulations on having been awarded 2023... Continue Reading →
A special-needs child is a celebration of all that’s good in this world
I'll be honest: When we first found out (prenatally) that our boy had Down syndrome, it was devastating. I had to fight my inner demons saying things like "what will the world think about him and us?", "What if I don't love him?" and "Will I be happy?". I think it's safe to say that... Continue Reading →