As humans, there's nothing so recognisable as human suffering. We go through our lives with a constant bombardment of challenges, battles and misery, while trying to find those small oases of calmness in between. The extent of our perceived suffering depends entirely on circumstances, perspectives, and prior experiences. The sorrows of a child who's lost... Continue Reading →
Running at the speed of life: With disability as the norm
Let's get straight to the point here: having a disability doesn't mean you are completely helpless. It simply means that you are having to learn and do things a bit differently from those around you, and that's something I have come to learn is not a failure. On the contrary, it makes you more creative,... Continue Reading →
Apparently, I’m Father of the Year 2023!
As I'm typing this on my phone in Amadeus' hospital room, my son is resting in his hospital bed, hooked up to a device that monitors his vital signs, while a soft "hisssss" can be heard from his oxygen mask. Meanwhile, my phone is buzzing left and right with congratulations on having been awarded 2023... Continue Reading →
2021: CMT, pregnancy, miscarriage, hyperemesis, Down syndrome, cancer
I don't even know what to think, say or feel anymore. I don't even know how all of this has managed to fit into just one year, much less how I am (and we're) still alive. I think I know what it feels like to be a tiny ship in a vast ocean, one moment... Continue Reading →