For the past couple of years, we've been living in a sea of uncertainty about our future. But the one thing that was never uncertain was that we'll never settle for the next best thing. By virtue of our beliefs and the people we are--shaped by our unusual pasts and experiences--we've made some choices that... Continue Reading →
A sense of purpose and belonging shouldn’t be a privilege
How do you find a sense of belonging when you deal with uncommon or rare issues? How do you reconcile disabilities without losing your sense of self-worth? Are you selfish if you don't stay and try to fix a broken system? We recently returned from a trip to the United States. Part of the reason... Continue Reading →
Running at the speed of life: With disability as the norm
Let's get straight to the point here: having a disability doesn't mean you are completely helpless. It simply means that you are having to learn and do things a bit differently from those around you, and that's something I have come to learn is not a failure. On the contrary, it makes you more creative,... Continue Reading →
Pesky positivity: Loving the chaos that brings colour to life
Sometimes, I think that I can be a bit unbearable with my positivity, particularly when I'm contemplating in text like I do here. But, I think it's worth taking a moment to explain where I'm coming from, because it's easy to have hope, faith and love when life goes well, but when life rears its... Continue Reading →
A special-needs child is a celebration of all that’s good in this world
I'll be honest: When we first found out (prenatally) that our boy had Down syndrome, it was devastating. I had to fight my inner demons saying things like "what will the world think about him and us?", "What if I don't love him?" and "Will I be happy?". I think it's safe to say that... Continue Reading →
Beyond all doubt: How orphanhood is shaping my fatherhood
No matter the culture, no matter the language, no matter the childโone universal fact transcends every border and every notion man could ever invent: a child is born to love. There are many things a child can do without, but a sense of belonging isnโt one of them. But I am about to have a... Continue Reading →
2021: CMT, pregnancy, miscarriage, hyperemesis, Down syndrome, cancer
I don't even know what to think, say or feel anymore. I don't even know how all of this has managed to fit into just one year, much less how I am (and we're) still alive. I think I know what it feels like to be a tiny ship in a vast ocean, one moment... Continue Reading →