For the past couple of years, we've been living in a sea of uncertainty about our future. But the one thing that was never uncertain was that we'll never settle for the next best thing. By virtue of our beliefs and the people we are--shaped by our unusual pasts and experiences--we've made some choices that... Continue Reading →
A sense of purpose and belonging shouldn’t be a privilege
How do you find a sense of belonging when you deal with uncommon or rare issues? How do you reconcile disabilities without losing your sense of self-worth? Are you selfish if you don't stay and try to fix a broken system? We recently returned from a trip to the United States. Part of the reason... Continue Reading →
I almost wished away the greatest part of me
There was a time in life I would've given anything to be "normal" (as far as I'd seen from those around me). However, having unexpectedly found myself in the rather unique position of becoming a father—with disabilities (Charcot-Marie-Tooth, Tourettes syndrome)—to a son who also has a disability (Down syndrome) has taught me that I almost... Continue Reading →
Apparently, I’m Father of the Year 2023!
As I'm typing this on my phone in Amadeus' hospital room, my son is resting in his hospital bed, hooked up to a device that monitors his vital signs, while a soft "hisssss" can be heard from his oxygen mask. Meanwhile, my phone is buzzing left and right with congratulations on having been awarded 2023... Continue Reading →
The birthday gift that defied time, odds and a pandemic
I always tell people that life is fair. The irony here is that I never quite believed it myself. I'd watch (and even help) people reach new heights, and yet, I'd feel like I was falling further and further behind. Echoes of my past told me I wasn't worth the same, and that some people... Continue Reading →